APPLETON - Tim Hansen, 29, of Appleton was diagnosed with Charcot-Marie-Tooth disorder at the age of five. The neuromuscular disorder is one of 43 listed under the Muscular Dystrophy Association (MDA) program.
"None of my friends, anybody outside my family didn't even know I was suffering with that," said Hansen, who is can walk, unlike many others with the disease. "The camp meant the most to me, so I take that times ten for what it means to the other kids."
Tim went from attending the MDA Summer Camp, to volunteering and eventually being promoted to volunteer camp director. He has also helped in fundraising events, was chapter president and participated in local MDA telethons at WLUK-TV, FOX 11.
"When the kids show up at camp, Tim Hansen gets many, many hugs," said Roxanne Shimek, executive director of the MDA Greater Green Bay Area Chapter. "Those children absolutely love and adore him and for good reason."
Tim's hard work won him MDA's local and state Personal Achievement Awards and he is nominated for the national award, which will be announced during the annual MDA Telethon.
"The kids mean everything to me," said Hansen. "I tell their parents and I tell the other volunteers that the kids do more for us at MDA summer camp than we will ever do for them."
The 45th Annual Jerry Lewis MDA Telethon takes place September 5-6 and can be seen on FOX 11.
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